CDC Public Health Datasets and Access Guide for Tribes and Tribal Epidemiology Centers

December 30, 2022

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

Cross-Cutting Data

Library

Centers for Disease

Control and

Prevention (CDC)

CDC Data and Statistics

Cross-agency view of CDC data and statistics and

tools for working with the data.

• Access CDC Data and Statistics to

identify data of interest, points of

contact, and information on how to

access the data.

Cross-Cutting Data

Library

Center for

Surveillance,

Epidemiology, and

Laboratory Services

(CSELS)

CDC WONDER (Wide-ranging ONline Data for

Epidemiologic Research)

Menu-driven system that makes a wide array of

CDC’s information resources available to public

health professionals and the public.

• Access the CDC WONDER site to

identify data of interest and

information on accessing or requesting

specific data.

Health, United

States

National Center for

Health Statistics

(NCHS)

Health, United States

Presents an overview of national health trends

organized around four subject areas: health status

and determinants, utilization of health resources,

healthcare resources, and healthcare expenditures

and payers. Uses data from a wide variety of

sources, even external to CDC. Tables examine

long terms trends in health over a wide range of

demographic and socioeconomic indicators.

Estimates for the American Indian/Alaska Native

population are presented where available.

• Access the Health, United States – Data

Finder site for current and recent

reports. Drop-down menus allow users

to search for tables that have data on

specific groups.

• Access Previous Reports.

Healthy People

National Center for

Health Statistics

(NCHS)

Healthy People

Identifies public health priorities to help

individuals, organizations, and communities across

the United States improve health and well-being.

Healthy People 2030, the initiative’s fifth iteration,

builds on knowledge gained over the first four

decades. NCHS leads measurement of the nation's

Access publicly available data:

• Healthy People 2030 Objectives

• Healthy People 2020 Disparities Data

• Healthy People 2020 Progress by

Population Group – Choose “Race and

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

progress toward meeting objective targets as well

as overarching goals of the Healthy People

initiative, which include eliminating disparities and

achieving health equity. Healthy People 2030

includes American Indian/Alaska Native in its

standard race/ethnicity data template; 163

objectives collect data for this population across

approximately 29 mostly federal data systems,

and data are shown when they meet applicable

presentation standards.

Ethnicity” under the “Group by”

column in the chart and then select

“Topic Area” in the first column.

National Center

for Health

Statistics (NCHS)

Public-Use Data

National Center for

Health Statistics

(NCHS)

NCHS Public-Use Data File and Documentation site

Provides access to datasets, documentation, and

questionnaires from NCHS surveys and data

collection systems. Visit the site for a list of

available data.

• Access data downloading instructions

in the “readme” files on the NCHS

Public-Use Data File and

Documentation site.

• Users of NCHS public-use data files

must comply with data use

restrictions to ensure that the

information will be used solely for

statistical analysis or reporting

purposes.

Antimicrobial

Resistance

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

National Antimicrobial Resistance Monitoring

System (NARMS)

Provides 1) antibiotic susceptibility data on enteric

pathogens (Salmonella, Shigella, E. coli,

Campylobacter, non-cholerae Vibrio); 2) predicted

antibiotic resistance based on analysis of whole

genome sequence data among isolates sequenced

for PulseNet; 3) summaries of the results of testing

and predicted determinations for each genus,

species, serotype, drug, and drug class; (4) annual

• Access data on the NARMs Now:

Human Data site.

• Email entericbacteria@cdc.gov to

request NARMS data that cannot be

obtained via CDC NARMS Now.

• Some requests may require a Data Use

Agreement (DUA).

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

reports of resistance trends and generates

datasets for research purposes by CDC staff and

the worldwide scientific community; and 5) Public-

facing tools on the web for querying the data and

downloading summary reports and individual

isolate data.

• Depending upon the nature and scope

of the request, it can take several

weeks to months to provide the data.

Bacteria, Enterics,

Amoeba, and

Mycotics

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

BEAM (Bacteria, Enterics, Amoeba, and Mycotics)

Dashboard

Interactive tool to access and visualize data from

the System for Enteric Disease Response,

Investigation, and Coordination (SEDRIC). Provides

timely data on pathogen trends and serotype

details to inform work to prevent illnesses from

food and animal contact. Focused on data for

Salmonella bacteria, but will eventually include

additional pathogens, antimicrobial resistance

data, and epidemiologic data from outbreak

investigations. Does not present tribal data

separately; however, it does provide access to

real-time data for all partners.

• Access the BEAM (Bacteria, Enterics,

Amoeba, and Mycotics) Dashboard.

• Access Frequently asked questions.

• Email simso@cdc.gov to request access

to additional data.

Babesiosis

Center for Global

Health (CGH)

National Surveillance for Babesiosis

Contains case patient de-identified data on

demographics, illness, and exposures. Cases are

reported by state and local jurisdictions.

Babesiosis case report form shows more

information on the data collected.

• To request additional data or

assistance, fill out the tribal public

health data request form.

• A DUA is required.

• Average time to provide requested

data once a final DUA is received is 7–

10 days.

Behavioral Risk

Factors

National Center for

Chronic Disease

Prevention and

Behavioral Risk Factor Surveillance System (BRFSS)

System of health-related telephone surveys that

collect state data (50 states, District of Columbia, 3

• Access BRFSS questionnaires, data, and

data analysis tools on the BRFSS site.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

Health Promotion

(NCCDPHP)

US territories) about more than 400,000 adult US

residents regarding their health-related risk

behaviors, chronic health conditions, and use of

preventive services.

• To request additional data or

assistance, fill out the tribal public

health data request form.

Botulism

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

National Botulism Surveillance

System

Collects reports of all laboratory-confirmed

botulism cases in the United States and is

continuously monitored for early detection of

outbreaks. Demographic (e.g., age, sex, race and

ethnicity), clinical (e.g., transmission category,

case-patient outcome), laboratory (e.g., laboratory

testing method, toxin type), and epidemiologic

(e.g., vehicle) data are reported by all 50 states

and the District of Columbia.

• Email botsurveillance@cdc.gov to ask

for a data request form. Complete the

form and return it to the same email

address.

• Average time to provide the data is 1–3

months, depending on the nature and

extent of the request.

Cancer

National Center for

Chronic Disease

Prevention and

Health Promotion

(NCCDPHP)

The US Cancer Statistics American Indian and

Alaska Native Incidence Analytic Database can be

used to describe the incidence of cancer, identify

American Indian and Alaska Native populations

most affected by cancer, evaluate cancer

prevention and screening activities, and assess

cancer disparities.

• Access public use data on the US

Cancer Statistics American Indian and

Alaska Native Incidence Data site.

• To request additional data or

assistance, fill out the tribal public

health data request form.

Childhood Blood

Lead

National Center for

Environmental

Health (NCEH)

Childhood Blood Lead Surveillance System

Contains de-identified data received from state

and some local health departments on children

tested for lead levels in their jurisdictions.

• Email LPPS@cdc.gov to request data

assistance. In some cases, states may

have more complete data than CDC.

National and state by county data files

are available on CDC’s website. CDC

can also assist with identifying state or

local Childhood Lead Poisoning

Prevention Program points of contact.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

• Average time to provide the data varies

depending on the nature and extent of

the request.

Cholera and Other

Vibrio Illness

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

Cholera and Other Vibrio Illness Surveillance

(COVIS)

Reports data on human infections with pathogenic

(illness-causing) species of the family

Vibrionaceae, which cause vibriosis and cholera.

Data include demographics (e.g., age, sex, race

and ethnicity), a description of the person’s illness

and medical history; recent seafood consumption;

recent exposure to bodies of water, raw or live

seafood or their drippings, or marine life; and

source(s) of seafood consumed. For more

information on data collected, see the COVIS

report form.

• Email COVISResponse@cdc.gov to ask

for a data request form. Complete and

return the form to the same email

address.

• Average time to provide the data is 3–6

months, depending on the nature and

extent of the request.

COVID-19

Centers for Disease

Control and

Prevention (CDC)

CDC COVID Data Tracker

Provides COVID-19 data and surveillance data.

Frequently Asked Questions: COVID-19 Data and

Surveillance

• Access the CDC COVID Data Tracker.

• To request additional data or

assistance, fill out the tribal public

health data request form.

COVID-19

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

National Wastewater Surveillance System (NWSS)

Coordinates and builds the nation’s capacity to

track the presence of SARS-CoV-2, the virus that

causes COVID-19, in wastewater samples collected

across the nation. State, tribal, local, and

territorial health departments participating in

NWSS submit testing data to CDC. CDC then

standardizes and interprets these data and

presents them in the COVID Data Tracker. How

often sites collect wastewater samples and how

• Access data on the COVID Data Tracker:

Wastewater Surveillance site. Users can

view and download data from two

public datasets: NWSS Public SARS-

CoV-2 Wastewater Metric Data and

NWSS Public SARS-CoV-2

Concentration in Wastewater Data.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

frequently data are reported to CDC varies by

health department.

NWSS Data Collation and Integration for Public

Health Event Response (DCIPHER) data are

available to tribes and Tribal Epidemiology Centers

(TECs) upon explicit permission from participating

tribes and approval to access the DCIPHER system.

• Email NWSS@cdc.gov to request

additional data and for access to the

DCIPHER system.

• Users must sign the DCIPHER Rules of

Behavior and NWSS non-disclosure

agreement (NDA), and only the data

from each jurisdiction (tribe) is

available to that jurisdiction (tribe).

• Data can be made available

immediately after that if the requestor

already has DCIPHER access. Several

working days are needed to provide

access to the DCIPHER system.

• TECs can request access to the tribal

data by filling out the tribal public

health data request form. CDC will

contact the participating tribe(s) for

which data are requested to determine

whether the tribe(s) give permission to

provide the data to a TEC or TECs.

Chronic Disease

National Center for

Chronic Disease

Prevention and

Health Promotion

(NCCDPHP)

Leading Indicators for Chronic Diseases and Risk

Factors website

Provides data that can be sorted on indicator,

state/national comparisons, and “breakout

category,” which includes demographics.

• Access the Leading Indicators for

Chronic Diseases and Risk Factors

website.

• Visit Getting Started video guides for

interacting with the data.

Cyclosporiasis

Center for Global

Health (CGH)

National Surveillance for Cyclosporiasis

Contains case patient de-identified data on

• Email data requests to

cyclospora@cdc.gov.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

demographics, illness, and exposures. Cases are

reported by state and local jurisdictions.

• A DUA is required.

• Average time to provide data is 7–10

days.

Environmental

Health

National Center for

Environmental

Health (NCEH)

Environmental Public Health Tracking Network

(EPHTN)

Brings together health data and environmental

data from national, state, and city sources and

provides supporting information to make the data

easier to understand. The Tracking Network has

data and information on environments and

hazards, health effects, and population health.

• Access the Environmental Public Health

Tracking Network site. The site

provides downloadable datasets,

including topic-specific data

dashboards such as the Environmental

Justice Dashboard and Heat and Health

Tracker. On Tracking’s Data Explorer, a

“Tribal Area” points of interest layer is

available to add to any data query

alongside the environmental and

health outcome data.

• To request additional assistance, fill out

the tribal public health data request

form.

Firearm Injury

National Center for

Injury Prevention

and Control (NCIPC)

Firearm Injury Surveillance Through Emergency

Rooms (FASTER) Program

FASTER data are collected from a subset of 10

jurisdictions contributing data to the National

Syndromic Surveillance Program (NSSP), which

collects data from about 71% of the nation’s

emergency departments in near real-time through

the BioSense Platform.

• Email fasternofo@cdc.gov to request

access to FASTER data.

• A DUA is needed with each jurisdiction

that provided the requested data to

CDC, which CDC can facilitate.

Foodborne,

Waterborne, and

Enteric Disease

Outbreaks

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

National Outbreak Reporting System (NORS)

Receives data on all foodborne and waterborne

disease outbreaks and enteric disease outbreaks

from other sources. For more information on data

collected, see the NORS reporting forms.

• Access the NORS data and NORS

Dashboard.

• To request additional data, email

NORSAdmin@cdc.gov and ask for a

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

NORS is making updates in late 2022 that will

include the addition of two high-level tribal health-

related questions: 1) whether exposures occurred

on tribal land (based on census bureau

boundaries) and 2) how many cases visited an

Indian Health Service or tribal facility.

data request form. Complete and send

the form back to the same email

address.

• Average time to provide the data is 2–4

weeks, depending on the nature and

extent of the request.

Gonorrhea

National Center for

HIV, Viral Hepatitis,

STD, and TB

Prevention

(NCHHSTP)

Gonococcal Isolate Surveillance Project (GISP)

Monitors antibiotic resistance trends in Neisseria

gonorrhoeae bacteria. In GISP, N. gonorrhoeae

specimens are collected each month from the first

25 men who attend STD clinics in selected US

cities and have also been diagnosed with urethral

gonorrhea. Participating regional laboratories test

the specimens for resistance to select antibiotics.

The results of these tests are then transmitted to

CDC, where they are collated and analyzed. Data

available: aggregate and line list data. Of note, in

GISP during 2019–2020, the percentage of GISP

participants identifying as Alaska Native or Native

American was 0.75% and 0.29%, respectively.

• To request additional assistance, fill out

the tribal public health data request

form.

• Depending on the complexity of the

data request, it may take several

months to obtain the necessary

reviews and approvals and to process

data requests.

Hantavirus

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

National Hantavirus Surveillance Registry

Contains surveillance data for confirmed

hantavirus cases from 1993 to present. More

information on what data are collected by states is

shown on the Hantavirus Case Report Form.

Data does not contain reference to tribal

community. Often the only variable that

references tribal member is the race variable

categorizing a case as “American Indian or Alaska

Native.”

• Access the Reported Cases of

Hantavirus Disease page.

• Access high-level information on the

Reported Cases of Hantavirus Disease

site.

• For additional data, email a data

request to spather@cdc.gov. CDC

receives data only at the state level.

Contact your local or state health

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

department for information about

hantavirus disease cases in your area.

• A DUA is not required; however, CDC

has to contact the jurisdiction(s) that

provided the data to request approval

of data release.

• Average time to provide the data varies

depending on the nature and extent of

the request.

Healthcare Safety

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

National Healthcare Safety Network (NHSN)

Provides data needed to identify problem areas,

measure progress of prevention efforts, and

ultimately eliminate healthcare-associated

infections (HAIs). Allows healthcare facilities to

track blood safety errors and important healthcare

process measures such as healthcare personnel

influenza vaccine status and infection control

adherence rates.

Serves over approximately 25,000 medical

facilities tracking HAIs. Current participants

include acute care hospitals, long-term acute care

hospitals, psychiatric hospitals, rehabilitation

hospitals, outpatient dialysis centers, ambulatory

surgery centers, and nursing homes, with hospitals

and dialysis facilities representing the majority of

facilities reporting data.

• Access NHSN Reports.

• To request additional assistance, fill out

the tribal public health data request

form.

Hepatitis

National Center for

HIV, Viral Hepatitis,

Viral Hepatitis Surveillance

• Access Viral hepatitis surveillance

reports.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

STD, and TB

Prevention

(NCHHSTP)

Includes case-based surveillance for acute

hepatitis A; acute, chronic and perinatal hepatitis

B; and acute, chronic, and perinatal hepatitis C.

More information on what data are collected by

states is shown on the Viral Hepatitis Case Report

Form. (This form was finalized in September 2013

to serve as a guide for surveillance and is based on

Council of State and Territorial Epidemiologists

recommendations) and the Viral Hepatitis Case

Record Form (National Electronic

Telecommunications System for Surveillance).

• To request additional data or

assistance, fill out the tribal public

health data request form.

• Other data available upon request

include (1) Limited de-identified line

level data, releasable in compliance

with the Assurance of Confidentiality

covering these data and (2) Custom

data requests can be fulfilled if

permissible and based on data re-

release agreements with each state,

and guidance/assistance with data use

and interpretation, on suggested uses.

HIV/AIDS

National Center for

HIV, Viral Hepatitis,

STD, and TB

Prevention

(NCHHSTP)

National HIV/AIDS Surveillance

Includes case-based surveillance and longitudinal

data collection for cases meeting the HIV case

definition, including birth/death certificate data,

laboratory reports and other relevant data

For additional allowable (based on data re-release

agreements with each state) a data request form

can be request from the branch chief. Data

available at national, state, and county (with

some restrictions) levels and includes diagnoses,

prevalence, care outcomes, social determinants of

health, etc.

• Access HIV Surveillance reports and

data tables.

• To request additional data or

assistance, fill out the tribal public

health data request form.

• Custom data requests can be fulfilled if

permissible and based on data re-

release agreements with each state,

and guidance/assistance with data use

and interpretation, on suggested uses.

HIV/AIDS

National Center for

HIV, Viral Hepatitis,

STD, and TB

National HIV Behavioral Surveillance (NHBS)

Provides bio-behavioral surveillance data among

persons at high risk for HIV infection.

• Access reports, publications, and

informatics under each population

section from the NHBS homepage.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

Prevention

(NCHHSTP)

Surveillance is conducted in rotating, annual cycles

in three different populations at increased risk for

HIV: 1) gay, bisexual, and other men who have sex

with men (known as the MSM cycle); 2) persons

who inject drugs (known as the PWID cycle); and

3) heterosexually active persons at increased risk

for HIV infection (known as the HET cycle).

Data collection instruments for NHBS are available

at Methods and Questionnaires (cdc.gov)

Data are published in annual reports summarizing

key outcomes.

• Email nhbs@cdc.gov to request custom

data requests for aggregated results or

to request access to restricted use

datasets.

HIV/AIDS

National Center for

HIV, Viral Hepatitis,

STD, and TB

Prevention

(NCHHSTP)

Medical Monitoring Project (MMP)

Provides data on persons with diagnosed HIV,

including interview and medical record abstraction

data.

Data collection instruments

• Access HIV Surveillance Reports.

• Email custom data requests to

MMP@cdc.gov. The process will

include completing a concept proposal

form. MMP staff are available to

provide technical assistance in

requesting, analyzing, and interpreting

MMP data.

HIV, STDs,

Hepatitis, and TB

National Center for

HIV, Viral Hepatitis,

STD, and TB

Prevention

(NCHHSTP)

NCHHSTP AtlasPlus

Allows users to interactively create customized

tables, maps, and charts using nearly 20 years of

CDC’s surveillance data on HIV, viral hepatitis,

STDs, and TB. Also provides access to indicators on

social determinants of health, allowing users to

view social and economic data in conjunction with

surveillance data for each disease. Provides charts,

maps, and tables functions and allows viewing

data by year, geography, and demographics.

• Access the NCHHSTP AtlasPlus site.

• FAQs, technical notes, and a glossary

are available on the site homepage.

• To request additional data or

assistance, fill out the tribal public

health data request form.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

Influenza (Flu)

National Center for

Infectious and

Respiratory Diseases

(NCIRD)

Influenza Hospital Surveillance Network (FluSurv-

Net)

Provides data on hospitalization rates associated

with flu. A minimum set of data on all identified flu

cases includes age, sex, race and ethnicity,

surveillance site, date of hospital admission, and

positive influenza test result/date. Hospitalization

rates are calculated as the number of residents of

a defined area who are hospitalized with a positive

influenza laboratory test divided by the total

population within the defined area. FluSurv-NET

collects data on American Indian or Alaska Native

race, Indian Health Service insurance coverage,

and patient-level census-tract data.

• Access data, including rate data by

race/ethnicity and some clinical and

demographic data, on FluView

Interactive (updated weekly).

• Email yta8@cdc.gov to request other

data.

• Average time to provide the data is 1–4

months from approval, depending on

the nature and complexity of the

request, and some requests may

require a data use agreement.

• A DUA is required.

Injury

National Center for

Injury Prevention

and Control (NCIPC)

WISQARS™

An interactive database that provides fatal and

nonfatal injury, violent death, and cost of injury

data. Researchers, the media, public health

professionals, and the public can use WISQARS™

data to learn more about the public health and

economic burden associated with unintentional

and violence-related injury in the United States.

• Access WISQARS data.

• Access WISQARS™ Help Using Injury

Data.

• To request additional assistance, fill out

the tribal public health data request

form.

Laboratory-based

Enteric Disease

Surveillance

(LEDS)

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

Laboratory-based Enteric Disease Surveillance

(LEDS) system

Collects data on Salmonella, Shigella, and Shiga

toxin-producing E. coli (STEC) infections. Data

include demographic information about the ill

person (age, sex, state of residence), and details

about the organism causing the specific infection.

• Email phlissupport@cdc.gov to ask for

a data request form. Complete and

return the form to the same email

address.

• Average time to provide the data is 1–3

months, depending on the nature and

extent of the request.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

These data are reported to CDC by state, local, and

territorial public health laboratories.

Listeria

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

National Listeria Surveillance

Collects reports of laboratory-confirmed cases of

human listeriosis in the United States.

Demographic, clinical, laboratory, and

epidemiologic data are collected using a

standardized, extended questionnaire.

• Email listeria@cdc.gov to ask for a data

request form. Complete and return the

form to the same email address.

• Average time to provide the data is 1–3

months, depending on the nature and

extent of the request.

Mpox

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

Mpox 2022 Outbreak Cases and Data

Provides Mpox case counts and trends, laboratory

test result data, and vaccine administration data.

• Access Mpox downloadable datasets.

• To request additional data or

assistance, fill out the tribal public

health data request form.

National Health

and Nutrition

Examination

Survey

National Center for

Health Statistics

(NCHS)

National Health and Nutrition Examination Survey

(NHANES)

Examines a nationally representative sample of

about 5,000 persons each year. These persons are

located in counties across the country, 15 of which

are visited each year.

Interview includes demographic, socioeconomic,

dietary, and health-related questions. The

examination component consists of medical,

dental, and physiological measurements, as well

as laboratory tests administered by highly trained

medical personnel.

• Access the NHANES public dashboard.

• To request additional data on American

Indian/Alaska Native populations,

submit a research proposal through the

CDC Research Data Centers.

• NCHS provides a list of restricted

variables by NCHS survey. Email

rdca@cdc.gov for assistance in

accessing restricted NCHS data.

• From the time that a proposal is

submitted to the RDC to physically

accessing the data, researchers can

expect the process to take 11‒19

weeks.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

National Health

Interview Survey

National Center for

Health Statistics

(NCHS)

National Health Interview Survey (NHIS)

Provides data on a broad range of health topics

collected through personal household interviews,

including data to track health status, healthcare

access, and progress toward achieving national

health objectives. See the NHIS Data,

Questionnaires and Related Documentation for

information on data collected.

• Access the NHIS public dashboard on

the Interactive Summary Health

Statistics for Adults website.

• To request additional data on American

Indian/Alaska Native populations,

submit a research proposal through the

CDC Research Data Centers (RDCs).

• NCHS provides a list of restricted

variables by NCHS survey. Email

rdca@cdc.gov for assistance in

accessing restricted NCHS data.

• Researchers can expect to access the

data approximately 11–19 weeks after

submitting the proposal to the RDC.

National Intimate

Partner and

Sexual Violence

National Center for

Injury Prevention

and Control (NCIPC)

National Intimate Partner and Sexual Violence

Survey (NISVS)

Provides data on sexual violence (SV), stalking, and

intimate partner violence (IPV), including lifetime

and 12-month experiences of SV, stalking, and IPV

at the national and state level; associated health

impacts; and age of first victimization of SV,

stalking, and IPV.

Also provides data from a 2010 oversample of

American Indian/Alaska Native persons. These

data include tribal affiliation (if provided by the

respondent). Data were collected by CDC on

behalf of the National Institute for Justice. Data

• Access data at National Intimate

Partner and Sexual Violence Survey

(NISVS) Series website (umich.edu).

• Request restricted data by clicking on

the “access restricted data” button for

each survey and follow the page

instructions.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

were collected simultaneously with the general

population data.

Typhoid and

Paratyphoid Fever

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

National Typhoid and Paratyphoid Fever

Surveillance System (NTPFS)

Collects data on human cases of typhoid and

paratyphoid fever. State and local health officials

use a standard report form to report detailed

epidemiologic information on laboratory-

confirmed cases, including patient demographic

and clinical information, typhoid vaccination

status, and travel history.

• Email entericfever@cdc.gov and ask for

a data request form. Complete and

send the form back to the same email

address.

• Average time to provide the data is 1–3

months, depending on the nature and

extent of the request.

Violent Death

National Center for

Injury Prevention

and Control (NCIPC)

National Violent Death Reporting System (NVDRS)

Tracks and monitors violent deaths (suicides,

homicides, legal intervention deaths,

unintentional firearm deaths, and deaths of

undetermined intent). All 50 states, the District of

Columbia, and Puerto Rico participate in NVDRS.

Provides a de-identified, multi-state, case-level

dataset comprising hundreds of unique variables.

The database includes short narratives to describe

the circumstances related to violent deaths,

including descriptions from law enforcement and

coroner/medical examiner investigative reports.

While tribal affiliation is not available, NVDRS does

collect information on race and ethnicity.

Currently, data is available for 2003–2020.

• Email nvdrs-rad@cdc.gov to ask for

data access request documents and

forms. Complete and return the forms

as instructed.

• Requestors must prepare and submit a

proposal for review. To request access

to the NVDRS RAD, the primary

investigator must meet all of the

following criteria:

- Have a master's degree or higher;

- Hold a research position or faculty

appointment at a research

organization, government agency, or

institution of higher education. This

includes research foundations or grant-

making organizations.

- Agree to comply with NVDRS RAD

security, confidentiality, and data

protection requirements, as outlined

during the review process

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

- Local, county, state, and federal

government employees, regardless of

degree or research position, are also

eligible to apply for the NVDRS RAD.

• On average, data request proposals are

reviewed within 4–6 weeks. Upon

receipt of response to

reviews/feedback, data access is

provided within 1–5 business days.

Pregnancy Risk

Assessment

National Center for

Chronic Disease

Prevention and

Health Promotion

(NCCDPHP)

Pregnancy Risk Assessment Monitoring System

(PRAMS)

Provides data on maternal health behaviors and

experiences before, during and shortly after

pregnancy. Includes data on America Indian and

Alaska Native populations. Several PRAMS

grantees also specifically sample American

Indian/Alaska Native populations for PRAMS

surveillance.

• Fill out the PRAMS Proposal data

request form, which is available on the

PRAMS data request site. The site also

provides instructions on how to submit

the data request form.

• A signed Data Sharing Agreement (DSA)

is required with any data request.

Instructions for completing the DSA are

on the data request site.

• Average time to provide the data is 1–2

months, depending on the nature and

extent of the request.

Rocky Mountain

Spotted Fever

(RMSF)

National Center for

Emerging and

Zoonotic Infectious

Diseases (NCEZID)

RMSF Prevention Program

Includes program indicators such as prevention

services, capacity surveys. Relevant tribes and

TECs are already included in reports and findings

via the RMSF coalition. All reports and program

findings are available to relevant tribal partners.

RMSF Clinical Studies (2002–2011)

• Access RMSF Epidemiology and

Statistics.

• Data summaries and reports are

provided as soon as they are available

to relevant tribes and TECs.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

Provides medical chart abstractions on RMSF cases

and non RMSF hospitalized controls. Findings have

been shared with tribal partners and published in

the peer reviewed literature. All data belong to

the individual tribes, but de-identified data could

be shared with TEC at the direction of both tribes.

RMSF Long Term Sequela Study

Includes medical chart abstractions, patient

interviews and neurological exams for selected

patients. Findings have been shared with relevant

tribes and are awaiting IHS approval for

publication in the peer reviewed literature. De-

identified data belong to the tribes but could be

shared with TECs at the direction of participating

tribes.

RMSF Rodeo Study, KAB Surveys, Tick Burden,

and Project Enrollment Data

Findings have been shared with tribal leaders and

published in the peer reviewed literature. Data

belong to the tribe but could be shared with TECs

at the direction of the tribe.

Ecological data in tribal communities highly

endemic for RMSF. Data include ticks tested for

Rickettsia, canine seroprevalence studies etc. Data

are collected with tribal permission for relevant

communities. Data summaries are shared with

relevant tribes when they become available. This

data could be shared with relevant tribes by

request within 30 days.

• All data from tribal-specific studies

belong to the individual tribe(s), but

de-identified data can be shared with

TECs at the direction of participating

tribes.

• A DUA is required.

• To request additional data or

assistance, fill out the tribal public

health data request form.

• De-identified data could be provided to

participating tribes by request within 1

week.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

Sexually

Transmitted

Diseases (STDs)

National Center for

HIV, Viral Hepatitis,

STD, and TB

Prevention

(NCHHSTP)

Nationally Notifiable Disease Surveillance System

(NNDSS)

Provides case-based surveillance data for

nationally notifiable sexually transmitted diseases

(syphilis, chlamydia, gonorrhea, and chancroid).

The NETSS Implementation Plan contains the

procedures and record layouts that must be used

by state and local health departments to

electronically report cases of nationally notifiable

STDs to CDC via the National Electronic

Telecommunication System for Surveillance

(NETSS).

The STD and congenital syphilis message mapping

guides (MMGs) outline the requirements for

electronically reporting cases of nationally

notifiable STDs in the Health Level 7 (HL7) format.

Additional aggregate data are available at the

national, state, and county levels (based on data

re-release guidelines with CSTE) can be made

available through custom data requests.

• Access aggregate data published

annually in the STD surveillance report.

• Email std_surv_inquiry@cdc.gov to

request data release guidelines and

custom data request forms.

• Dependent on intricacies of the data

request, aggregate data are usually

available within 2 weeks on average.

Sexually

Transmitted

Diseases (STDs)

National Center for

HIV, Viral Hepatitis,

STD, and TB

Prevention

(NCHHSTP)

STD Surveillance Network (SSuN)

Provides enhanced behavioral, demographic, and

clinical information on gonorrhea cases reported

to state and local health departments; provide

information on patients presenting for care in

specialty STD clinical settings; and explore

innovative strategies to improve STD surveillance

nationwide. Aggregate and line list data are

available.

• Email requests for a data dictionary and

data request template to

SSUN_TA@cdc.gov.

• Requests for data require a specific

analysis plan and identification of

variables of interest. Analytic proposals

require approval of the Principal

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

Investigators in each site contributing

data.

• The current protocols are provided on

the SSuN website. Of note, during

2020–2021, the percentage of all

gonorrhea cases in participating SSuN

jurisdictions identifying as Alaska

Native/Native American was 0.38% and

0.40%, respectively.

• Depending on the complexity of the

data request, it may take several

months to obtain the necessary

reviews and approvals and to process

data requests.

Social

Vulnerability

Agency for Toxic

Substances and

Disease Registry

(ATSDR)

CDC/ATSDR Social Vulnerability Index (SVI)

Uses 15 US census variables to help identify

communities that may need support before,

during, or after disasters.

• Access the CDC/ATSDR SVI Data and

Documentation Download site.

• Email svi_coordinator@cdc.gov for

data assistance.

Tuberculosis

National Center for

HIV, Viral Hepatitis,

STD, and TB

Prevention

(NCHHSTP)

National Tuberculosis (TB) Surveillance System

(NTSS) and linked National Tuberculosis Molecular

Surveillance Center (NTMSC) data

Provide case-based surveillance data and related

genotypic data for verified cases of tuberculosis.

• Access aggregate data published

annually in the TB surveillance report.

• To request additional data or

assistance, fill out the tribal public

health data request form.

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

• Additional aggregate data or limited

de-identified line level data are

available in compliance with the

Assurance of Confidentiality covering

these data.

• Depending on the complexity of the

data request, several months may be

required to obtain the necessary

reviews and approvals and to process

data requests.

VaxView

National Center for

Infectious and

Respiratory Diseases

(NCIRD)

VaxView

Provides vaccination coverage data for all ages.

Data views include ChildVaxView, SchoolVaxView,

TeenVaxView, AdultVaxView, FluVaxView, and

COVIDVaxView.

• Access the VaxView website for data

descriptions, data, visualization tools,

and user guides.

• To request additional data or

assistance, fill out the tribal public

health data request form.

Vital Statistics

National Center for

Health Statistics

(NCHS)

National Vital Statistics System (NVSS) Provides

data on births and deaths in the United States. The

Vital Statistics Rapid Release program provides

access to the timeliest vital statistics for public

health surveillance, through releases of 1)

Quarterly Provisional Estimates, 2) Vital Statistics

Rapid Release Reports, 3) focused surveillance

activities, and 4) state and national provisional

control counts of births, deaths and infant deaths

based on a current flow of vital statistics data from

state vital records offices.

• Access the NCHS Public Data

Dashboards.

• For access to additional restricted data,

which may include additional data on

American Indian/Alaska Native

populations, follow the instructions at

Restricted-Use Vital Statistics Data site.

• Allow 4–6 weeks for processing of data

requests.

Youth Risk

Behaviors

National Center for

HIV, Viral Hepatitis,

STD, and TB

Youth Risk Behavior Surveillance System (YRBSS)

Monitors six categories of health-related

behaviors that contribute to the leading causes of

• Access YRBSS data and documentation.

Data available: full survey data, annual

datasets, Combined YRBS middle

Data Subject

Lead CDC Center,

Institute, or Office

Data System or Dataset

How To Access the Data

Prevention

(NCHHSTP)

death and disability among youth and adults,

including:

• Behaviors that contribute to unintentional

injuries and violence

• Sexual behaviors related to unintended

pregnancy and sexually transmitted

diseases, including HIV infection

• Alcohol and other drug use

• Tobacco use

• Unhealthy dietary behaviors

• Inadequate physical activity

• Obesity

• Asthma

• Other health-related behaviors

• Sexual identity and sex of sexual contacts

YRBSS is a system of surveys. It includes 1) a

national school-based survey conducted by CDC

and 2) state, territorial, tribal, and local surveys

conducted by state, territorial, and local education

and health agencies and tribal governments.

school datasets, and Combined YRBS

high school datasets.

• Use the YRBSS Data Request Form to

request state, district, territory, or

tribal government data files not

available on the website.

• Learn more about Data Availability and

Requesting YRBSS Data Files.